I am joined in this exploration of narcolepsy by Julie Flygare, an internationally recognized patient-perspective leader, and an accomplished advocate, to discuss her patient perspective of the disease as narrated in her award-winning memoir, Wide Wake and Dreaming.
Julie has advanced her leadership in the sleep and healthcare space through speaking engagements, publications, earned media, collaborations, and advocacy and awareness initiatives.
Our conversation explored Julie’s onset of narcolepsy with excessive sleepiness long before she was diagnosed with narcolepsy after she developed cataplexy. She discussed her on-going struggles with the diverse symptoms of the disease, as well as here validating investigations, and indispensable medical treatments. Our conversation also covered what her diagnosis has taught her regarding prioritising time and appreciating the moment.
Prior to accepting her current role as President & CEO of Project Sleep, Julie Flygare served as President of Project Sleep’s Board of Directors, while also gaining invaluable experience in marketing and philanthropy at the Pancreatic Cancer Action Network and City of Hope. Julie served on the National Institutes of Health’s Sleep Disorders Research Advisory Board from 2012 – 2015, and she delivered the TEDx Talk, “What Can You Learn from a Professional Dreamer? on March 22, 2022,
Watch on YouTube:https://youtu.be/u_aaP7oB2-A
Listen on Spotify:https://open.spotify.com/episode/1Sasyc2lBHHqg65elylSkY
Listen on Apple podcastshttps://podcasts.apple.com/us/podcast/episode-54-narcolepsy-with-julie-flygare-author-of/id1748456248?i=1000682851031
Listen on RSS feedhttps://rss.com/podcasts/theneurologylounge/1829658/
***
And don’t forget to subscribe for the weekly episodes!
The Neurology Lounge 