Many neurological disorders are long term conditions and our patients often require a lot of information and support. There are many charities and associations that offer this and I have drawn up a linked list below. For practical purposes this list is limited to the UK where I practice.
- Action Duchenne
- Alzheimer’s Society
- Brain and Spinal Injury Centre (BASIC)
- British Polio Fellowship
- British Retinitis Pigmentosa Society
- Charcot Marie Tooth (CMT) UK
- Child Brain Injury Trust
- Children Living with Inherited Metabolic Diseases (CLIMB)
- Children’s Mitochondrial Disease Network
- Contact a Family (disabled children)
- David Lewis Centre (complex epilepsy)
- Dementia UK
- Duchenne Family Support Group
- Encephalitis Society
- Epilepsy Action
- Epilepsy Society
- Erb’s Palsy Group
- For a Better Life with Epilepsy (FABLE)
- FSH-MD Support Group
- Guillain Barre and Associated Inflammatory Neuropathies (GAIN)
- Spinal Muscular Atrophy Support UK
- Joint Epilepsy Council of the UK and Ireland
- Mental Health Charity (MENCAP)
- Motor Neuron Disease Association (MNDA)
- Multiple Sclerosis Society
- Multiple Sclerosis Trust
- Multiple System Atrophy Trust
- Muscular Dystrophy UK
- Myasthenia Gravis Association (myaware)
- Myositis UK
- Narcolepsy UK
- Neurosupport
- Parkinson’s UK
- PSP Association
- SCOPE (disability)
- Spinal Injuries Association
Here is a link to an extensive list of support organisations in the UK
I think this is an important list and I will maintain it on the sidebar for easy reference.
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